Gil Sarig
What is your role/focus on the End AxD board?
Fundraising, Research CureMap & Patient Advocacy
Why did you want to serve?
Since my daughter was diagnosed, I've met wonderful people, physicians, scientists and advocates that support AxD patients and their families.
I want to be a part of the effort to cure AxD. I am based in the UK and already involved in several charities and research efforts, I can help EndAxD
What do you want to accomplish?
I want to End AxD to be a first-class charity leading the way to cure AxD. I want to share my skills and experience to make that happen.
Just a few words that you want to convey to others.
There is lot's of talented people, opportunities, goodwill and passion to cure AxD. It won't be easy or straight forward but it is possible.
Together as a group we can help the patients & families affected. Together we can End AxD.