Our Mission
“End AxD is fiercely committed to serving the Alexander Disease community by accelerating research into treatments and a cure, advocating for, supporting, and empowering patients and families.”
Our Vision
A world where Alexander's Disease no longer limits lives, where families are empowered with knowledge, connection, and hope, and where transformative research leads to treatments and hopefully a cure bringing real change to those impacted by this rare condition.
At EndAxD, we envision a future where:
Every individual affected by Alexander's Disease has access to cutting-edge treatments and comprehensive care.
Families are equipped with the resources, support, and community they need to feel empowered through their journey.
The broader public is informed about Alexander's Disease, fostering awareness and understanding.
Advocacy efforts drive policy changes, ensuring equitable research funding and healthcare support.
Collaborative partnerships accelerate groundbreaking research, uncovering cures and interventions that redefine the outlook for Alexander's Disease.
Our commitment to research, connection, advocacy, and hope fuels our determination to make this vision a reality, one step at a time.