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“From the very beginning, our research on Alexander disease has been a close partnership with the patient/family community with their gracious donations of tissue and DNA. But research is expensive, and our search for treatments and eventual cures would not have been possible without their generous financial support. We’re getting close. Please help."

Albee Messing, VMD PhD

Professor emeritus of Neuropathology
Waisman Center &
Dept of Comparative Biosciences 
University of Wisconsin-Madison 

“As a researcher working on rare diseases, I'm very aware of the challenges patients and families face. Traditional funding avenues often overlook these conditions, leaving patients with limited treatment options and scientists with limited funding. That's why I believe patient community funding is so vital. It empowers us to pursue innovative approaches, like our lab's research on developing new AI algorithms to generate highly targeted therapies, which has received NIH funding after patient advocacy funding. With the support of dedicated patient communities, like EndAxD, I am confident that we can accelerate the development of potentially life-changing breakthroughs and bring hope to those affected.”

Pranam Chatterjee, PhD
Assistant Professor of Biomedical Engineering
Assistant Professor of Computer Science
Duke University

Why give?

  • Filling a Critical Gap

    Alexander Disease is an ultra-rare disease with limited awareness and resources. By giving to End Alexander Disease, you're helping to address an urgent and often overlooked need.

  • Driving Research

    There is no cure for Alexander Disease, and research is underfunded. Your donation directly supports the studies needed to uncover treatments and give hope to patients and their families.

  • Improving Lives

    Families affected by Alexander Disease often lack the resources and support they need. End Alexander Disease provides critical assistance and advocacy to improve their quality of life.

  • Creating Awareness

    Many people have never heard of Alexander Disease. Supporting this nonprofit helps shine a light on the condition, building understanding and compassion for those affected.

  • Encouraging Collaboration

    Your donation enables partnerships between researchers, medical experts, and advocacy groups, accelerating the path toward new breakthroughs and treatments for Alexander Disease.

  • Tangible Difference

    With Alexander Disease being so rare, every donation has a profound impact, bringing the nonprofit closer to advancing research, raising awareness, and supporting families in need.