Lauren Clure 9/17/24 Lauren Clure 9/17/24

Pranam Chatterjee, recipient of EndAxD funds to study AxD, receives NIH grant to expand AI platform to target diseases

"The EndAxD award was instrumental in getting the NIH grant and the projects are very complementary. The results of the R35 will help us be more specific in targeting GFAP and I look forward to continuing to work on Alexander Disease with our research."

- Pranam Chatterjee

Lauren Clure 7/19/24 Lauren Clure 7/19/24

IONIS Update on Clinical Trial

Read the letter below for more information and details from IONIS…

Lauren Clure 6/27/24 Lauren Clure 6/27/24

Astellas Announces Sponsored Research Agreement with UMass Chan Medical School

Astellas Pharma US, Inc. has teamed up with UMass Chan Medical School to advance research on a groundbreaking gene therapy for Alexander disease, an ultra-rare and fatal condition…

Lauren Clure 5/8/24 Lauren Clure 5/8/24

Thank you …

Just wanted to say THANK YOU for making Golf Fore Grayson 2024 a huge success!

Lauren Clure 3/15/24 Lauren Clure 3/15/24

Empowering Families Affected by Alexander Disease Through Groundbreaking Research

We are excited to share that End AxD has funded the innovative research conducted by the Chatterjee Lab at Duke University…

Lauren Clure 12/15/23 Lauren Clure 12/15/23

End Of Year Giving Invitation

As we celebrate the holidays, we are grateful for the blessings of community. 2023 has been a tough year for so many, but we remain grateful and hopeful.

Lauren Clure 10/6/23 Lauren Clure 10/6/23

Save the Date! Golf Fore Grayson! - April 29th, 2024

We are back on the calendar for the 3nd annual Golf Fore Grayson!

Lauren Clure 9/8/23 Lauren Clure 9/8/23

United Leukodystrophy Foundation Conference '23 - AxD Session Links

We're excited to share some highlights from the recent United Leukodystrophy Foundation conference, where the latest advancements in Alexander disease research and treatments were shared. Here's a recap of the sessions you won't want to miss:

Lauren Clure 9/7/23 Lauren Clure 9/7/23

Webinar Recording Available Now: AAV-medicated Gene Silencing (August 2023)

If you weren't able to join us on Sunday, August 6, 2023 for Dr. Gao’s update regarding “AAV-mediated Gene Silencing for the Treatment of Alexander Disease”

Lauren Clure 4/2/23 Lauren Clure 4/2/23

End AxD funds gene therapy research for Alexander disease

The foundation End AxD, a nonprofit dedicated to research, treatment and a cure for Alexander disease, has donated $74,000 to UMass Chan Medical School to explore a gene therapy treatment for the fatal neurological disease.

Lauren Clure 2/23/23 Lauren Clure 2/23/23

End AxD is excited to announce two new partnerships with leading universities.

A major gift was presented to the lab of Dr. Mel Feany M.D, Ph.D., a professor of Pathology at Harvard Medical School and Brigham and Women's Hospital.