New Community Statement on the Alexander disease program from Ionis

Please see the latest community statement on the Alexander disease program from Ionis. End Alexander Disease is here to ensure that the voices of Alexander disease patients and families are heard. Caring for your child is your number one priority, so please feel free to let me be your advocate if you have questions or concerns. Leigh@endaxd.org

Download Alexander Disease: A guide For Patients and Families by Dr. Albee Messing here.

Previous
Previous

Promising treatment for Alexander Disease moves from rat model to human clinical trial.

Next
Next

Clinical Trials for Alexander Disease have Begun!